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Day After Day With Spinal Muscular Atrophy

A cross-sectional study examined health-related quality of life of adults with spinal muscular atrophy in the era of disease-modifying therapy.

Spinal Muscular Atrophy: The Caregiver’s Perspective

In managing patients with a serious condition like spinal muscular atrophy, it’s often the caregiver who suffers along with the patient. A new study sought to better quantify this relationship.